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Author Topic: Stem Cell Transplant  (Read 11907 times)

brewcity77

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Re: Stem Cell Transplant
« Reply #25 on: February 18, 2015, 05:08:40 AM »
Great news Dish! Sending all my positive vibes to you and Bradley!
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MU Fan in Connecticut

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Re: Stem Cell Transplant
« Reply #26 on: February 18, 2015, 07:24:09 AM »
His shirt says it all.....SUPER KID



Was thinking the same thing.

GooooMarquette

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Re: Stem Cell Transplant
« Reply #27 on: February 18, 2015, 07:40:36 AM »
Very happy for you and your family.  We are pulling for Bradley!

Spaniel with a Short Tail

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Re: Stem Cell Transplant
« Reply #28 on: February 18, 2015, 07:50:21 AM »
Good to hear. Blessings to you and your family.

jficke13

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Re: Stem Cell Transplant
« Reply #29 on: February 18, 2015, 08:42:10 AM »
Keep putting Ws on the board every day. God bless.

nathanziarek

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Re: Stem Cell Transplant
« Reply #30 on: February 18, 2015, 09:32:10 AM »
That picture absolutely breaks my heart. I'm sure I'm not that strong.

Keep fighting. Thoughts are with you, Bradley!
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jsglow

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Re: Stem Cell Transplant
« Reply #31 on: February 18, 2015, 10:35:12 AM »
Great news.  That SuperMan shirt was right on. MVP performance.

drewm88

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Re: Stem Cell Transplant
« Reply #32 on: February 18, 2015, 11:11:58 AM »
Love the positive updates. Keep em coming.

muwarrior69

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Re: Stem Cell Transplant
« Reply #33 on: February 18, 2015, 05:19:48 PM »
This is great news....better than winning a National Champisonship.

2TimeWarrior

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Re: Stem Cell Transplant
« Reply #34 on: February 19, 2015, 06:43:57 AM »
Continued prayers coming your way!

CTWarrior

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Re: Stem Cell Transplant
« Reply #35 on: February 19, 2015, 07:14:05 AM »
So happy for the great news!  Continued prayers and best wishes!
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connie

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Re: Stem Cell Transplant
« Reply #36 on: February 21, 2015, 10:40:59 AM »
Just saw the update Dish.  Keep fighting the good fight, and give Superman a hug.
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Sir Lawrence

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Re: Stem Cell Transplant
« Reply #37 on: February 21, 2015, 10:41:50 AM »
Prayers are good.  Donations are good too.  Lets continue to help this lad:



Ludum habemus.

DegenerateDish

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Re: Stem Cell Transplant
« Reply #38 on: February 26, 2015, 09:28:16 PM »
Wanted to say thank you to everyone for all the positive notes/messages. It's weird, I've been in a hospital going on 3 weeks now, and you'd think time goes by slowly, but it's gone by incredibly fast, everything's a blur.

Bradley's at +9 (that's referencing days post transplant). Slight concern that he was doing "too well" (maintaining normal ANC/WBC counts), but over the last 24 hours, he's seen his numbers go down, and is starting to get his butt kicked by mucositis. Sounds weird to say, but we are glad he's starting to get hammered, which means his body is reacting to the transplant, and his sister's cells will start to fully take over soon.

Haven't really had a chance to follow any sports, but hoping the team can give us something to watch with a good run in the BE tourney in a few weeks.

You guys/gals really rock, keeping my fingers crossed for the day we can announce that our family is heading back up to Milwaukee next season for a game, and can shake as many hands as possible with you all.


Daniel

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Re: Stem Cell Transplant
« Reply #39 on: February 26, 2015, 09:44:15 PM »
Prayers still going up. God bless you all!

wadesworld

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Re: Stem Cell Transplant
« Reply #40 on: February 26, 2015, 09:50:19 PM »
Praying for the best.
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StillWarriors

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Re: Stem Cell Transplant
« Reply #41 on: February 26, 2015, 09:54:49 PM »
Praying for continued strength, perseverance and perspective for your whole family.

TAMU, Knower of Ball

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Re: Stem Cell Transplant
« Reply #42 on: February 27, 2015, 01:10:28 AM »
Thoughts and prayers dish
TAMU

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MUWarrior4Life

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Re: Stem Cell Transplant
« Reply #43 on: February 27, 2015, 06:07:39 AM »
Wonderful News!!!

mu_hilltopper

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Re: Stem Cell Transplant
« Reply #44 on: February 27, 2015, 09:16:29 AM »
Dish, I've always been curious .. how's the twin sister managing in all this?  I imagine it's an interesting dynamic, having to "save" your brother, the procedure on a healthy child, etc.   

Care to write about that? 

DegenerateDish

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Re: Stem Cell Transplant
« Reply #45 on: February 27, 2015, 11:38:29 AM »
Dish, I've always been curious .. how's the twin sister managing in all this?  I imagine it's an interesting dynamic, having to "save" your brother, the procedure on a healthy child, etc.   

Care to write about that? 

Topper...that's a good question, it's been interesting to tackle as a parent of twins.

This may be stating the obvious, but my son/daughter are fraternal twins. One might be surprised how often we get asked if they are identical, and of course that's physically not possible. In other words, they are brother/sister, who just happened to be born at the same time. The egg did not split, but rather two eggs (if that makes sense).

When we were told my son was high risk, and would eventually need a transplant, everyone in our family got swabbed. Vast majority of the time, parents can not be donors for their own children (Craig Sager & Craig Sager Jr are a rare example of a case where it seemed to work). The odds of Charlie (Bradley's twin sister) and our 7 month old son Camden being donors for Bradley was only 25%.

When you get swabbed to see if you're a match, they check ten different markers to see how you match the patient. Generally speaking, 5 markers matching, one can try a high risk transplant. 7 markers matching are good, better odds. 10 for 10 is a perfect match. Upon hearing Charlie was 10/10, we had the "bonus" that she is the same age, same height, approx same weight, and same blood type. There wasn't a better match on the planet than her.

Since she's only 4, my wife and I debated for a while how to communicate to her what was going on. We were in agreement that we didn't want to pressure her, and at no point did we want to put the thought in her head that she was going to try to save her brother's life. We both felt it was important though to ask her if she was ok with giving Bradley "her blood". We didn't want to force her into this, that didn't feel right.

She was more than happy to help her brother, and did a great job the day of the procedure, and has been doing great physically since. 4 year olds are very resilient, she was running around that night after her procedure, and asked if she could keep her bandage on so she could show her friends at preschool.

We're incredibly lucky, fortunate, blessed that she was there for him. Most people in this position are not, and have to search the donor database and wait for a match. We do not take this for granted, and my goal when this is done is to raise awareness of how easy it is for people to get swabbed to see if they are a donor match for someone else.


jficke13

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Re: Stem Cell Transplant
« Reply #46 on: February 27, 2015, 12:10:02 PM »
[...]

We're incredibly lucky, fortunate, blessed that she was there for him. Most people in this position are not, and have to search the donor database and wait for a match. We do not take this for granted, and my goal when this is done is to raise awareness of how easy it is for people to get swabbed to see if they are a donor match for someone else.


To the extent that it matters, you succeeded in getting me on the Be the Match registry. It's insanely easy to join and I don't see any reason why everyone that could join doesn't.

cj111

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Re: Stem Cell Transplant
« Reply #47 on: February 27, 2015, 02:15:05 PM »
This is the best thing I've read all day, or in many days.  Lots of people pulling for you and your family--so happy for you all.

mu_hilltopper

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Re: Stem Cell Transplant
« Reply #48 on: February 27, 2015, 02:18:59 PM »
Dish might not post this .. but I will:

www.gofundme.com/gzrcnc

Help out a fellow Warrior.

 

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